Taylor had a procedure today to help her get fed in a more comfortable way. Tomorrow morning she will get another procedure called a tracheostomy to allow the doctors to remove the breathing tube from her mouth, which will make her much more comfortable.
As Taylor has been off Propofol for a while now, we are seeing a lot more activity from her. Last night she had the behavior of a sleeping person. Eyes closed, still most of the time, occasionally moving around a bit. Today she is acting like a really groggy person waking up from a deep sleep. She opens her eyes and stares, stretches some, then goes back to sleep. She also gets really annoyed when the nurse has to do things she doesn’t enjoy like clearing her throat and lungs. Generally she seems a bit pissed off and for good reason, as she is pretty uncomfortable right now. Her awareness of the situation is still an improvement over a few days ago so we are taking it as a good sign.
I smiled when I read this post! 🙂 Taylor, reading about your improvements each day makes my day; I’m so happy you are exceeding expectations and doing your best–just like with everything else in your life! I know you have the strength to get through this. This website is basically my homepage now; keep on healing and improving!!!
Taylor is perfect!!! Our positive thoughts and prayers are with you guys! Wishing Taylor a speedy recovery!!!
I’m thinking of you, Taylor, and wishing you a speedy recovery and much health and peace. May God Bless you always!
Love,
Mrs. Dodds
Beverly Hills High School
March 4th, 2014
Hello, Little Wild Flower (Taylor)! Nancy Shaw and I wish you well. I wrote a song today that you may find worthwhile. I wrote it thinking of you and wondering what I could say to cheer you up. I will admit that I am writing a book now called WILD FLOWERS; and maybe my song while thinking of you was written for that project as well; but for what it’s worth. Here it is below. Maybe some around you will sing it to you as they choose a tune of their own for it. We love you, Dear One! Be in touch!
Wild Flowers
By
Francis William Bessler
Laramie, Wyoming
March 4th, 2014
REFRAIN:
Wild Flowers – are so very pretty.
Wild Flowers – to help us see.
Wild Flowers – to inspire the soul.
Wild Flowers – to help us know.
If you want to know life,
then march up a hill.
Find a wild flower
and admire it until –
you’ve realized that Heaven
is where you are;
for Heaven, my friend,
is both near and far. Refrain.
In a wild flower, my friend,
there is no sin.
Take some time to study it
and you’ll always win.
Just look at it and know
it’s full of majesty.
Put one in your hair
and you’re a king or a queen. Refrain.
The magic of a wild flower
is so very fine.
And where it grows,
life is so Divine.
So, consider yourself one
and love yourself in time;
and know that Eternity
is only a step behind. Refrain.
ENDING:
Wild Flowers – are oh so sweet.
Wild Flowers – bloom Eternally.
Wild Flowers – so very pretty.
Wild Flowers – for you and me.
Yes, Wild Flowers – are for you and me.
Wild Flowers – for you and me.
Wild Flowers – for you and me.
Get Well Soon, Little Wild Flower! Gently, Nancy & Will
Hi John, Mario and I are wishing the best for you guys and Taylor. We’ll keep sending you good thoughts and energy. Please take care of yourself too. Lv, Mario & Tracy
Thank you for the continued updates. We continue to pray for Taylor and family, keeping all in a positive light. Taylor is perfect <3
Much love,
Donna McPartlan
Sending all my love and positivity Taylor! You got this!
Best wishes to Taylor!
Good luck with the trach placement! Hope the recovery continues along this positive track
Good luck with the trach placement! Our thoughts are with you all
John & Kit,
You two have always been amazing. May God’s blessing be showered down on Taylor and you two. We will pray for all of you through this journey.
John, it’s a good sign for sure that Taylor seems ticked off when the nurse is poking at her! That she is surrounded with your and Kit’s love and good energy, and that she is at the great Mass General, bode well for the journey ahead.