Lots of Visitors and A Big Step

Taylor started the day with her physical therapists. They placed her in a seated position with her feet off the bed and her back up straight. She responded to verbal commands to turn her head left or right which greatly surprised the therapists. She then was visited by the two members of the respiratory team accompanied by two speech pathologists. They worked on making her tracheotomy more comfortable for her. The speech therapists asked Taylor to open her mouth, stick out her tongue and then to close her mouth and she obeyed each command which again surprised the therapists. While the four of them were in the room the attending physician and his team of residents came in on rounds. At that point there were about 10 professionals in the room plus Taylor and me. After they all left Taylor’s occupational therapists came in and tried to get Taylor to move her arms around but by this time Taylor was done performing. Later that day Taylor was seen by one of her doctors to examine her surprising behavior reported by the different therapists.

By responding to commands Taylor has taken a big step since this behavior is the first time she did something beyond her original prognosis. This greatly changes the treatment program we will put Taylor in and we are excited by her continued progress.

35 thoughts on “Lots of Visitors and A Big Step

  1. So happy to hear your news. We are praying for all of you and continuing the mantra. Taylor is perfect… and defying the odds
    Love, Sandy and Rob

  2. This is great to hear!!! We’re so excited here in Cali to hear that you are working on a strong recovery. Keep it up!!!
    -M Bronder

    • Hi Taylor. I am a friend of your dad’s. I read about your progress daily and am thrilled to hear about your latest steps. Keep going – you are strong. I can’t wait to meet you!

  3. So good to hear this positive news – way to go Taylor!!

  4. Hello there, you winner, you! Taylor, you are amazing! Keep on putting out the energy and effort and you will keep on astounding the doctors and us, the people who think the world of you. You go, girl!

  5. Fabulous news. She’s a fighter and we wish you all the best for finding a place that can meet her needs and help her gain as much functionality as possible. Thinking of you all

  6. Dear Kit, Taylor and you and the rest of your family are in my thoughts and prayers every day, and this morning’s news of Taylor’s responding to-and being able to “obey”-her commands, was so very wonderful!
    I went back to read all the emails from the beginning on 2/27/14, and I found one in Italian speaking of an article Taylor wrote and ending, “Your writing style has surprised me. Thank you, very beautiful article.”
    Perhaps Taylor speaks Italian, but if she or you wish, I’ll be glad to give you the beginning of the email as well.
    I feel as if I have a new lovely young brave and perfect friend in your daughter! Of course, I treasure both her and you, my already-friend, and send you love and joy.
    Nina Ahlstrin-Sarracino.

  7. Sending love from LA. Thank you for your beautiful words and for letting so many of us see this small part of what you are seeing and feeling. – Rebecca

  8. This is FANTASTIC news!! This is a very good sign of all good things to come……….

  9. Taylor, spring is coming, full of flowers, sunshine and joy with your wonderful news of progress this morning!
    Love, Nina Ahlstrin-Sarracino

  10. This is great news! Taylor is truly perfect and I have perfect faith in her recovery. Just to let you know I am on board thinking of all of you everyday. Thank you so much for these updates. You are an incredible family surrounded by love and hope near and far.

  11. Incredible. Taylor, you are amazing and perfect. Sending positive vibes your way daily.

  12. Incredible. Taylor, you are amazing and perfect! Sending positive thoughts your way daily 😀

  13. It’s indeed a big step! Happy for you, Taylor! Keep working harder and wish you the best!

  14. This is wonderful news and exciting to see the direction its taking. Taylor is strong and her will power even stronger. Keep pushing harder and positive results will continue to amaze us all! So so awesome!

  15. What a wonderful and exciting step!! This is HUGE! I am so thrilled for Taylor and for you all. Wishing Taylor and the whole family every possible buoy on her healing journey.

  16. Fantastic news! Know that we are thinking of you and your family here in Birmingham.
    Taylor is perfect!

  17. HAPPY, HAPPY, HAPPY to hear this fantastic news about your progress, Taylor! Keep up the good work, we are all pulling for you. Taylor is Perfect!

  18. Wow!! What fantastic developments!!!!! This is so marvelous!! I am filled with exclamation points and joy!!!!! Great going Taylor!! Your body is healing and you’re continuing with more exciting steps!!!!! I’m waving pom-poms and jumping up and down here at the L.A. sideline!!!

  19. We’re so happy to hear this news!! Thinking of you every day and sending love and postive thoughts your way!

  20. WOW! Kit and John, you must be ecstatic that Taylor responded to verbal commands! This does, indeed, change everything.

    Taylor, I am praying for you by name every morning. In particular, I’ve asked St. Therese of Lisieux to shower roses over you every day as you recover!

  21. All the “Taylor is Perfect” affirmations and accompanying prayers are powerful agents for healing, which is clearly manifesting. I look forward to meeting Taylor, and I anticipate great steps toward revealing her present perfection every day! Taylor, I’m a friend of your mom’s, and I can only imagine how exciting your progress is for your family. I bet that you can feel it, and I also bet that each step you take gets easier and easier for you. In my way of thinking, you’re just blowing away the clouds so the light can shine through – from you as well as to you!

  22. Taylor, keep doing it, girl!!
    Keep working and pushing!! God only knows how far you can go on this, your newest journey. You are our inspiration . You are perfect.

  23. Wow!!!! This is absolutely fantastic news and has made my month!!!!! Great job, Taylor! Keep on going!!! Everyday, you are always in my positive thoughts and prayers (and will continue to be as you make these steps, some baby/small and some large, towards you recovery).You’re picture is up on my lucky/happiness wall. 🙂 We all love you so much back here at MIT; I can’t wait to hear about the cool things that happen next on your recovery journey.

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