Taylor had her Tracheostomy (breathing tube) removed today. It took about one second and was uneventful, but it’s one tube removed closer to getting back to normal. She has to lay off the talking for a while to give her dressing a chance to stay in place while her skin heals. She still manages to let me know what she needs with abbreviated sentences. For instance, as I was leaning over her asking what she wanted to tell me she said, “Bad breath.”
Yesterday, Taylor’s Uncle Hung, Aunt Erika, and their children came to visit. After eating dinner with them, Aunt Erika fixed her hair while the guys were dispatched to get something called “hair detangler.” After they left, Taylor’s Aunt Pansy came over to help put Taylor to bed. At one point, I was massaging her shoulder, Pansy was massaging her legs, and the nurse was fixing her pillows. Although this was all happening because she was pretty uncomfortable with muscle irritation, I told Taylor this must be what it was like for Cleopatra. She responded by saying, “Itch my nose,” which got a good laugh all around. She eventually got to sleep and slept all night.
This morning in physical therapy, she did a bunch of neck exercises and was stood up on her knees. It was a real workout, and you could see her straining, but she also really appreciated it. Later while napping, she woke up suddenly, perhaps from a dream, and started saying, “I want to move! I want to move!” At first I didn’t know what she meant. Through questioning, she explained that she wants to control her body. We did some arm exercises. She is one motivated student and really giving it her all.
Tonight she was going to “sleep” smiling and laughing while listening to the book “America Again” by Stephen Colbert.