Cheyne-Stokes

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We learned today that Taylor’s awake/heavy breathing/rapid heart rate alternating with resting cycles are called Cheyne-Stokes.  Today, Taylor continued with these cycles and seemed to be more awake than sleeping.  With her tracheostomy, she has also transitioned from breathing with assistance from the respiratory machine to breathing on her own.  She still needs oxygen support; if she continues to get better, this will also be discontinued.  These changes are small, but we’ll take them!

9 thoughts on “Cheyne-Stokes”

  1. Sending light and love to the perfect Taylor, her parents, brother, extended family and friends.

    Dear perfect Taylor, I am glad that those annoying tubes have been removed, and that you’re doing the breathing on your own now. How perfect this is — you’re showing your parents and all who love you the ability of your brain cells and neuropathways to adapt and take care of essential things like breathing. Like someone commented here, you’ve always been great at tests. Keep up the good work! I’m visualizing your amazing adaptive brain cells, neurons, and all your body working out the best way to approach this test and give it your best.

    I loved reading the post about your pretty face. I could feel the love surrounding you. Let me continue to send love to you and those who love you.

    And oh, BTW, I’m in LA and willing to lend a hand here for Nate or Kit or anyone else who might need it. Just let me know.

    Katie M. (from Kit’s church)

  2. Hi Taylor-We knew you when you lived in Birmingham. Your mother and I worked in the same lab and a few times, my son Gabriel and you played together. We just wanted to let you know we are thinking of you and agree you are Perfect!

  4. More good news! Her steady progress and all the love and positive energy from this site is truly an inspiration. Taylor is Perfect indeed!

  5. So glad to hear about Taylor’s progress each day. Each step she takes on her journey of recovery shows how strong she is. Taylor is perfect! Sending love and healing thoughts.

  6. Thank you for the updates. Taylor is strong and resilient! Breathing on her own is terrific!!!!

  7. Kit, I am praying for Taylor continually. Thank you for these updates.

  8. We leave tomorrow for two weeks in China but we’ll be thinking of Taylor every day we’re there. Taylor is perfect.

  9. Hi Kit,
    It’s a big step, Taylor can breath on her own. We all believe Taylor will get better and better! You take care of yourself too!
    Jinghua

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