Beautiful Girl

Taylor had an elevated heart rate on Friday night, slightly over 100, but nowhere near where she was in Boston.  It was enough however, to prompt the nursing staff to restrict our movements to inside the hospital walls. Taylor, John and I had been looking forward to spending time outside, enjoying the blooming tulips in the beautiful garden and perhaps exploring the immediate neighborhood around Craig Hospital.  Her heart rate is back to normal now.  This episode is making us more seriously consider getting the defibrillator procedure done sooner rather than later since it will allow her more freedom while in in-patient care and the ability to lead a normal life without constantly having to worry about the possibility of another cardiac arrest.  She was very interested in learning more about the procedure and we watched / listened to a video together that explains it in great detail.

Other than that, we spent the day catching up on Reddit news posts and listening to some of her favorite songs she used to play in the shower at MIT.  Taylor was so happy singing and tapping to the tune of “Primadonna Girl”, that I could not help myself to move and sing along with her.

Later she had a phone call with her brother Nathan where she gave some secret pre-prom advice.

6 thoughts on “Beautiful Girl

  1. Taylor, you are the maker of good news and positive change! Wow, all your hard work is really paying off in a tentative discharge date and all your improvements. Hopefully you’re very proud of yourself, as all of us are. We can’t wait to see you back in LA and share some tunes and a walk under the blooming jacaranda. Sending love and affection always. xo Beth

  2. Healing is not a smooth road – more like a bumpy trail. So it’s wonderful that Taylor is steadily doing better. I’m most in awe of the social interactions that you are having with your dad, mom, and brother.

    • Vilma, we also have a wonderful family friend, Inge, who has been invaluable in her support of Taylor’s care. She visited Taylor once at MGH and recently at Craig, when she wrote this post.

  3. I am sorry that you guys couldn’t go outside to enjoy the spring weather. I hope Taylor can have the defibrillator procedure soon.