Well, after 11 weeks at Craig Hospital, Taylor was discharged yesterday. It certainly was a bittersweet day. Taylor made many gains while she was there. When she first arrived, she had a tracheostomy for breathing, a PEG tube for feeding, and a PIC line for medications. The most she could do was stick out her tongue for “yes,” and close her eyes for “no.” Now, she is tube and line free and can speak and have conversations. She can also sit, mostly unassisted, is getting better at standing every day, and helps her caregivers when they have to move her around. She is also learning how to walk again. With her awesome physical therapist, Taylor walked out of Craig yesterday (see video below)!
Yes, it was sad to say goodbye to the wonderful and caring staff (many of whom went out of their way to see Taylor and wish her well) because they have helped us so much. At the same time, it is wonderful to be home and be in familiar surroundings and to start the next leg of this journey.